Drowning...gurgle gurgle

Do you ever feel this way ?
We lately we have.It seems we cannot catch a break E.V.E.R
First off I got a bad infection when sick people came to our house(old landlord showed it and did not respect the wear a mask request)
Second we moved with no help.We have or I should say HE has family here but no one is ever able to help(go figure).So poor Søren has been doing his best at going to work then moving until almost midnight then repeat the next day.
We are done moving but now comes the unpacking and organizing.
Next 2 steps back..because I have not been eating right and was sick and on antibiotics for 7 weeks,stress, etc my hemoglobin dropped way down and so did the iron.
The Dr's here are shall we say (and I will keep it clean) hard to deal with.They call and expect you to run right in.Thing is I don't understand most of them and they don't speak english even though the hospital claims there is always someone that does.They mis understand alot of stuff and mis communicate it to other Dr's resulting in many phone calls to me yelling at me and calling me a liar when in fact it was the Dr that made the mistake.
You will never ever ever get an apology though so don't hold your breath.
The Dr yesterday(and there is a new one every day) told me it was his job to "push me" into doing what they want even if I don't want the treatment (aka blood transfusion) when my hemo is on the way back above normal already.
Next fall of 50 zillion steps was we were going "Home" to Texas on vacation.I have not been home in 5 years and was looking forward to it.We have not had a family vacation in 4 years.It is difficult to go on one with only one salary.
But alas we had to move so no vacation for us.
It is times like this I miss my family more than ever.They want to help with the girls and help us out but they are so far away.
Neeeext is UDLST we still have NOT heard back.They said I wold get something right away when they got my new passport...well it has been 4 months and they wont even answer calls from my attorney.....sigh
I worry about Søren as he is taking it all on but he is awesome and we will make it.
The sun is out now and it is like a life saver so I hope we start swimming again as we truly need to or well I don't really know .....
I love this saying
We May Not Have it All Together but Together We have it All

I worry about Søren as he is taking it all on but he is awesome and we will make it

The second MRI

Well I went for another MRI wednesday.It was open sided and it failed...Ok I failed.
I was told to take 15mg of oxynorm so I did and I still freaked out.
I am soooooooo claustrophobic it is not funny.
Here is where the last one failed as well.
They will try full sedation next time and it should work.
After I left because I started getting sick I thought I was dying.I have never ever been so sick in all my life.I wanted my mommy so bad.(I am a big girl but it was one of those times ya know)
Anyway I am finally able to see straight so I am off to do something besides sit in my chair

Saturday night cocktail

Alot of people go out for drinks or cocktails on saturday night but not me.Nope.
I stay in for mine and things is I get it every saturday no matter what.It makes me sick and is supposed to make me feel better.
I dont know but somehow methatrexate(mild chemo) and feel better do not go together

A little pity party...NOT

the last few months/weeks have been rough.My Ra is Lupus are running amok in my body.I have been told it will only get worse and I wont be doing alot of things I love.My shoulder might not be able to be fixed and thats ok,I will just learn to be left handed.I am on the strongest treatment now and let me tell you I have the bruises to prove it.I jsut started on Methatrexate shots since the pills well they made me sick.The problem now is my car is a standard and automatics are hard to find here.I fall alot so I do not go out walking alone (which I love) and miss is alot since we live at the beach.
BUT
I will not let this get me down.I have 4 wonderful daughter,3 of which are still at home.They need me and I need them.I have an awesome hubby who does more than his share of working,shopping,cleaning etc and never ever complains.So I am off to read,play with my kids and watch yet another episode of Dora.Ohh and a good thing about the meds is since it is a mild chemo I dont have to shave as often woohooo
Happy Friday Folks !!!

I am so over winter

and sick kids.Makayla has bronchitis and Mack has been home since tuesday with it as well.Now she has a higher fever and says her chest hurts....I know where this is going.
Pneumonia..she gets is often ever since she had a collapsed lung in 2006.I was sun and flowers and healthy kiddos that can play outside.This winter has been so cold and so full of snow.I hope I never see this much snow ever again!!
ok rant over

Stinky/Makayla

Yes her nickname is Stinky but here is a report
She has been sick a few weeks.The cough,runny nose thing and then yesterday bamm fever and its been 39c for over 24 hours.She is on antibiotics now and I am hoping the pneumonia doesnt get worse.My poor poor Stinky