Tuesday, May 3, 2011

May is Lupus Awareness Month

So May is Lupus awareness month.
Do you know someone that suffers from it ?
Here is a link to learn about Lupus
It is one of those "But you don't look sick " Disease.
I love this as a way to describe how life works for a Spoonie.Spoon Theory..
There are some things I wish people would understand about this disease it that while we might not "look " sick we can be very very sick.
It is hard to make people understand that when we cancel things at the last minute it is not to be mean or rude it is because I may not be able to walk or use my hands or even sit in a chair.
Today is one of those days.If you saw me you might say I am lazy and just hanging out in pj's but in reality I have not move.I cannot hold a cup or glass.I cannot even get my pants on because 1.my knees are so swollen and 2.I cannot button them since my hands are so bad.
I know people that have lost multiple organs and are having a really hard time now because of this stupid disease.My thing is if you know someone that suffers please please please read about it and talk to them about what you can do as a friend to help ease what they are going through.

2 comments:

suz said...

Missie,
I appreciate you sharing this information. I can honestly say I really know nothing of Lupus or anyone who has it. I enjoyed reading the spoon theory as well.
Hugs to you today as you battle this horrible beast called Lupus.

Suz

The Redhead Riter said...

"It is hard to make people understand that when we cancel things at the last minute it is not to be mean or rude"

People should try to believe the best about people instead of always assuming the worst first. I'm sorry you have this terrible disease. I've know people with it and they are beautiful people that have to fight constantly just to live.

Great post.